National Population Health Study of Neurological Conditions

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National Population Health Study of Neurological Conditions

NHCC worked in partnership with the Government of Canada (Public Health Agency of Canada, Health Canada and the Canadian Institutes of Health Research) to co-lead Canada’s first-ever National Population Health Study of Neurological Conditions (the Study).

In September 2014, Canadians living with brain conditions, caregivers and NHCC member organizations celebrated the completion of the Study and the release of the report Mapping Connections: An Understanding Neurological Conditions in Canada

NHCC is pleased to provide an overview of the Study, key findings and links to more resources below.

The four-year Study (2009-2013)  was funded by a $15 million investment from the Government of Canada and co-led by NHCC and the Public Health Agency of Canada. Its objectives were to improve the understanding of the:

  • impact of neurological conditions on affected individuals, their families, caregivers and communities;
  • risk factors related to the development of neurological conditions;
  • health services needs for both those affected and their caregivers;
  • scope of neurological conditions (incidence and prevalence).

Key findings:

  • By 2031, more Canadians with brain conditions will experience severe disability and require care from family and friends;
  • The number of Canadians living with dementia and parkinsonism will double;
  • Brain conditions impact individuals and caregivers in similar ways no matter what the cause;
  • The impact on work productivity is significant, permanent unemployment among those with a brain condition is 12 times higher than in the general population;
  • People living with brain conditions use more health services, at greater cost, than people with other chronic conditions;
  • Family and friend caregivers are absolutely essential to people with brain conditions and have  their own physical and mental health challenges because of stress and anxiety.

Resources from the Study

Study background

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