Projects

Scroll down to access presentations from each research project of the National Population Health Study of Neurological Conditions.

On September 24-25, 2012, the Third Progress Meeting of the National Population Health Study of Neurological Conditions (NPHSNC) was held in Toronto, Ontario, Canada. With  researchers, the Implementation Committee and the Scientific Advisory Committee present, attendees were provided with informative updates on the work that is currently underway across Canada.

Although the NPHSNC involves a suite of projects focused on the incidence and prevalence, impact, risk and health service utilization of our priority conditions, the final culmination of this work will result in a picture of the neurological landscape of Canada.

National Surveys:

The three surveys being developed as part of the study are:

• The addition of a neurological module to Canadian Community Health Survey (CCHS) 2010-2011; 
• The Survey on Living with Neurological Conditions in Canada (SLNCC); and
• The Survey of Neurological Conditions in Institutions in Canada.

Pan Canadian Research Projects:
Collectively the projects described below will meet the objectives of the four pillars of the Study - impact, risk factors, health services, and incidence/prevalence. The project titles and Principal Investigators are listed below with project updates from January 2012.

Future Health and Economic Impacts of Neurologiccal Conditions in Canada: Microsimulation with the Population Health Model

• Principal Investigator: Dr. Christina Bancej, Public Health Agency of Canada.

The Canadian Primary Care Sentinel Surveillance Network: Neurological Disease

• Principal Investigators: Dr. Neil Drummond, Departments of Family Medicine and Community Health Sciences, University of Calgary; Dr. Rick Birtwhistle, Department of Family Medicine, Queen's University; and Dr. Tyler Williamson, Department of Family Medicine, Queen's University.

Innovations in Data, Evidence, and Applications for Persons With Neurological Conditions

• Prinicipal Investigator: Dr. John P. Hirdes, Ontario Home Care Research and Knowledge Exchange Chair, University of Waterloo.

Use and Gaps in Health and Community-Based Services for Neurological Populations: A Systems Analysis

• Principal Investigator: Dr. Susan Jaglal, Professor, Department of Physical Therapy, Toronto Rehabilitation Institute Chair at the University of Toronto.

Neurological Registry Best Practice Guidelines and Implementation Toolkit

• Principal Investigator: Dr. Lawrence Korngut, University of Calgary.

Systematic Reviews of Factors Influencing the Onset and Progrression of Neurological Conditions: Current Status (2 projects)

• Principal Investigator: Dr. Daniel Krewski, Professor and Director, McLaughlin Centre for Population Health Risk Assessment, University of Ottawa.

The LINC Study: The Everyday Experience of Living With and Managing a Neurological Condition

• Principal Investigators: Dr. Tanya Packer, Professor and Director, Dalhousie University; and  Dr. Joan Versnell, Assistant Professor, Dalhousie University.

Understanding the Epidemiology of Neurological Conditions and Building the Methodological Foundation for Surveillance

• Principal Investigators: Dr. Nathalie Jetté, University of Calgary; and Dr. Tamara Pringsheim, University of Calgary.

Neurological Conditions in British Columbia

• Principal Investigators: Kim Reimer, Population Health Surveillance and Epidemiology, BC Ministry of Health; and Dr. Bob Fisk, Population Health Surveillance and Epidemiology, BC Ministry of Health.

Expansion of a Canadian Multi-Regional Population-Based Cerebral Palsy Registry

• Principal Investigators: Dr. Michael Shevell, NeuroDevNet; Dr. Maryam Oskoui, McGill University; and Lynn Dagenais, Montreal Children's Hospital.

Validation of Administrative Data Algorithms to Determine Population Prevalence and Incidence of Alzheimer's disease, Dementia, MS, Epilepsy and Parkinson's Disease

• Principal Investigator: Dr. Karen Tu, Scientist ICES, Associate Professor, University of Toronto, and Toronto Western Hospital.

Canadian Longitudinal Study on Aging Neurological Conditions Initiative

• Principal Investigators: Dr. Christina Wolfson, McGill University; and Dr. Parminder Raina, McMaster University.