Projects

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Scroll down to access presentations from each research project of the National Population Health Study of Neurological Conditions.

On March 1-2, 2011 the Inaugural Progress Meeting of the National Population Health Study of Neurological Conditions (NPHSNC) was held in Toronto, Ontario, Canada. With over 140 researchers, stakeholders, government officials, and NHCC Members present, guests got a glimpse of some of the work currently underway across Canada.

Although the NPHSNC involves a suite of projects focused on the incidence and prevalence, impact, risk and health service utilization of our priority conditions, the final culmination of this work will result in a picture of the neurological landscape of Canada.

National Surveys:
The three surveys being developed as part of the study are:

• The addition of a neurological module to Canadian Community Health Survey (CCHS) 2010-2011
• The Survey on Living with Neurological Conditions in Canada (SLNCC)
• The Survey of Neurological Conditions in Institutions in Canada.

Pan Canadian Research Projects:

Collectively the projects described below will meet the objectives of the four pillars of the Study - impact, risk factors, health services, and incidence/prevalence. The project titles and Principal Investigators are listed below.

The Everyday Experience of Living with and Managing a Neurological Condition
(The LINC Study)

• Principal Investigators: Dr. Tanya Packer, Professor and Director, Dalhousie University, Occupational Therapy and Dr. Joan Versnel, Assistant Professor, Dalhousie University, Occupational Therapy

Innovations in Data, Evidence and Applications for Persons with Neurological Conditions (ideas PNC)

• Principal Investigators: John P. Hirdes, PhD, University of Waterloo and Homewood Research Institute, Nathalie Jetté, MD, University of Calgary and Colleen J. Maxwell, PhD, University of Calgary

Canadian Longitudinal Study of Aging: Neurological Conditions Initiative (CLSA-NCI)

• Principal Investigators: Dr. Christina Wolfson, PhD, Professor, Department of Epidemiology, Biostatistics & Occupational Health and Department of Medicine, McGill University; Director, Neuroepidemiology Research Unit & Medical Scientist, Research Institute – McGill University Health Centre, Dr. Parminder Raina, PhD, Professor and Canada Research Chair in GeroScience; Raymond and Margaret Labarge Chair in Optimal Aging ; Director, Evidence-Based Practice Centre; Department of Clinical Epidemiology & Biostatistics, McMaster University and Dr. Ron Postuma, MD, MSc., Assistant Professor, Department of Neurology and Neurosurgery, McGill University
   

Neurological Conditions in British Columbia

• Principal Investigators: Kim Reimer, Population Health Surveillance and Epidemiology, Population and Public Health, B.C. Ministry of Health and Dr. Robert Fisk, Population Health Surveillance and Epidemiology, Population and Public Health, B.C. Ministry of Health

Systematic Review of Factors Influencing the Onset and Progression of Neurological Conditions

• Principal Investigators: Dr. Daniel Krewski, University of Ottawa, Dr. Caroline Barakat-Haddad, University of Toronto at Scarborough, Dr. Tamara Pringsheim, University of Calgary, Dr. Helen Tremlett, University of British Columbia, Dr. Don MacDonald, Newfoundland and Labrador Centre for Health Information
   

Validation of Administrative Data Algorithms to determine Population Prevalence and Incidence of Alzheimer’s Disease, Dementia, Multiple Sclerosis, Epilepsy and Parkinson’s Disease

• Principal Investigators: Dr. Karen Tu, ICES/University of Toronto, Dr. Liisa Jaakkimainen, ICES/University of Toronto and Dr. Debra Butt, ICES/University of Toronto

Canadian Primary Care Sentinel Surveillance Network: CPCSSN Neurodegenerative Conditions

• Principal Investigators: Dr. Richard Birtwhistle, MD MSc FCFP, CPCSSN Chair, Professor of Family Medicine and Community Health and Epidemiology, Queen's University, Dr. Neil Drummond, PhD, University of Calgary, Ms. Anita Lambert Lanning, BA MLS, CPCSSN Manager and Ms. Inese Grava Gubins, CFPC Director of Research

Understanding from within: Developing community-driven and culturally relevant models for understanding and responses to dementia among Aboriginal peoples

• Principal Investigators: Billie Allan, Native Women’s Association of Canada and
  Dr. Carrie Bourassa, First Nations University

Understanding the Epidemiology of Neurological Conditions and Building the Methodological Foundation for Surveillance

• Principal Investigators: Dr. Nathalie Jetté, MD, MSc, FRCPC, University of Calgary and Dr. Tamara Pringsheim, MD, MSc, FRCPC, University of Calgary

Micro-simulation

The development of a micro-simulation model will be utilized to project the costs and impacts of neurological conditions on Canadians over the next 5, 10, 15 and 20 years. As part of the Government of Canada’s initiative to build onto existing projects, this piece has been committed to the Statistics Canada POHEM model.